국립소록도병원 한센인의 삶의 질 관련요인

Abstract

Objective: This study aimed to examine the quality of life and identify its related factors for patients with Hansen’s disease at Sorokdo National Hospital. Methods: This study was cross-sectional, and the study subjects were 255 patients with Hansen’s disease at Sorokdo National Hospital. Data were collected from October 17 to October 31, 2023, and the survey was completed with structured questionnaires and electronic medical records. Data were analyzed with descriptive statistics, independent t-test, one-way ANOVA, Scheffé test, Pearson's correlation coefficient, and multiple regression analysis. Results: The average EQ-5D index of the study subjects was 0.78±0.20, and this score was statistically significantly different according to the general characteristics, health-related characteristics, Hansen's disease-related characteristics, and social support. According to the result of multiple regression analysis, the quality of life was found to be statistically significantly reduced in the following factors; advanced age, no spouse, no economic activity, patient in the treatment ward, not walking, poor subjective health, high perceived stress, high grade of disability. Conclusion: Quality of life for patients with Hansen’s disease was related to age, spouse, economic activity, admission status, days of walking, subjective health status, perceived stress, and grade of disability. Therefore, to improve the quality of life of patients with Hansen’s disease, it is necessary to establish and apply a strategy to develop a customized program that can be performed by the patients, considering the age and the individual's physical and social ability range.